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We are Odapus but very Happy and will Survive! |
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Written by Dian Syarief
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Wednesday, 24 February 2010 |
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What a beautiful friendship! On saturday, 20th February 2010, around 40 lupus friends from 3 different cities in Indonesia accompanied by their closes persons gathered in the SDF's basecamp to share their experience living with lupus. It was heavy rainy day, but it didn't stop the lupus friends, including Fifi Carmelia with her wheelchair to enjoy the gathering. Watching the CD titled "WE ARE ODAPUS, BUT VERY HAPPY AND WE WILL SURVIVE" also included in the program. Maria Stefianie Titik, the creator, compiled the pictures of lupus friends and their activities including SDF activities which present with "Care for Lupus" song as a background. Participants sang Care for Lupus song with holding hands. Time went by ang two hours was not enough to share many stories. But, all agreed although suffering from lupus, but it doesn't means that lupus friends could not happy. Raihan looked very comfy on mama Ira laps, Teguh on Mamas' Maria, Syahrial hugged by Susan, all were treated by Dilli delicious meals. You are all special, you are choosen. Let us hope that we will always be able to pass the examine given by God. Testimonial: * " ... thank you for a warm and loving welcome. I learned a lot from other lupus friends experiences ... " Linda Susanty * " ... what a wonderful & great moment! Dilli was very happy to meet, share , hugged and shake hands with Dian. Hope to see you next time ... " Dilliyana Santoso * " ... Thanks for the really warm welcome to given our family especially for our loving Fifi. We are pleased and really touched by all. Allah SWT always be with us ... " Marti Sidik, Fifi's mother. * " ... thanks Dian for the sharing ... " Evi Berlianty * " ... Hopefully our togetherness will bring something beautiful ... " Maria Stefianie Titik. * " ... I got lots of knowledge ... " Ayu Widanti * " ... Thanks for the warm welcome, keep inspiring... " Nurhayati
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