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Fighting Lupus One Book At A Time
Written by LUISA Project Administrator   
Wednesday, 27 January 2010

New book for charity tackling the obstacle of disease and disability in the family dynamic

Mama, Won’t You Play With Me?Over 8 million families in the United States alone have one or both parents disabled. The stress of illness can be difficult for anyone to bear but for the children of disabled parents it can be overwhelming. A child’s tendency is perhaps to act out in defiance and to be angry with the parent because they lack understanding. A new book has been released in an effort to open the lines of communication for these parents and their children.

As a Registered Nurse, mother and Systemic Lupus sufferer, Meg Walsh, author of Mama, Won’t You Play With Me? Knows both personally and professionally of the effects that long term illness can have on a family. In her own family, both her sister and brother-in-law are battling cancer, each with young children. Out of the 5 children born to Walsh and her 2 sisters, all 5 have a disabled parent. These numbers speak for themselves.

Walsh’s book is the story of Dudley Duckling whose mother has a broken wing and cannot play with him. It is a heartwarming story of love and family for any child and may bring comfort to the child of a disabled or ill parent.

For each book sold, Walsh will donate a portion of the proceeds to a local charity organization. Every few months a different charity will be chosen to receive these donations. She welcomes readers to contact her through her website, 

www.MegWalshOnline.com to share their story and nominate a charity to receive the donations.

Mama, Won’t You Play With Me?
ISBN 9781449014247
Softcover, 28 pgs

Buy the book at Amazon.com (click here for details)
Buy the book at Barnes & Noble.com (click here for details)


Last Updated ( Wednesday, 27 January 2010 )
 
New Year Greetings!
Written by Millicent Ong, MD   
Saturday, 02 January 2010

Thanks and Welcome the Year of the Tiger!

Dear Friends,

Happy New Year!  

When we greet someone “Happy New Year”, what we actually want to say are the following:

We are grateful for being alive today.

We are grateful for the many blessings that we received the previous year.

We are thankful for overcoming the obstacles, challenges that came our way in the past year.

We are thankful for the hope and opportunities that the new year brings.

In behalf of the staff and contributors of our three websites, www.retfi.org , www.lupus.ph and www.luisaproject.org :

we thank God for the opportunity to serve doctors, their patients and caregivers through the information provided in our websites;

we thank Prof. Tito Torralba for the inspiration and mental stimulation he continually provides to his colleagues and trainees;

we thank Prof. Sandra Navarra for the support and guidance she generously provides to her colleagues and trainees;

we thank Mr. Wilfred Villarruz and Mrs. Pia Villarruz for diligently updating our websites and patiently answering patient queries;

we thank all our contributors for making our websites informative and interesting;

we thank you for patronizing our websites for the past five years since 2005;

we thank you for allowing us to serve you better in the years to come, with the addition of quarterly newsletter, which is meant to serve those without steady internet access.

Let’s confidently and eagerly welcome the new Year of the Tiger with our firm determination and fervent prayers that it will be peaceful, blessed and fun-tastic for all of us! Cheers!

Sincerely,

Millicent Ong, MD


 
The Many Faces of SLE
Written by Jan Michael Lleva   
Monday, 28 December 2009
I always thought of systemic lupus erythematosus (SLE) as a disease which is so uncommon that it was not worth remembering;   there are only less than 3000 individuals with this condition in the Philippines, much less common than those with cardiovascular or even infectious diseases.  This view changed when I attended the workshop for SLE. I was confronted with its many faces.   The disease presented in a variety of ways that it could be easily mistaken for other common diseases.  I saw the patients and learned about the issues which need to be addressed when tackling this disease.
Read more...
 
Let's Band for Arthritis and Lupus - A Patient Enlightenment Workshop
Written by Robelle Tanangunan and Ma. Pia Villarruz   
Wednesday, 16 December 2009

29 November 2009
AMV College of Accountancy Multi-Purpose Hall
University of Santo Tomas, Manila

A PATIENT ENLIGHTENMENT WORKSHOP for both systemic lupus erythematosus (SLE) and Rheumatoid Arthritis (RA) patients was held last 29 November 2009 at the UST College of Accountancy Multi-purpose Hall. The workshop was based on the principle of “ILLNESS TRAJECTORY MODEL”, in consonance with the belief that the patient’s improved well-being and quality of life will depend on the intervention (medical or psychological) provided. It also aims to enlighten both patient and caregiver on the deeper understanding of their illness, providing them an opportunity to be in control of their illness.

Dr. Marthony Basco, a pediatrician who has been involved in group dynamics and training program sessions, designed the mechanics, questionnaires and procedures used in the activity, and provided overall supervision.


The Lupus workshop was held in the morning participated by 60 patients and caregivers. The afternoon slot was for chronic rheumatoid arthritis attended by 46 patients and caregivers.
Read more...
 
Ten Topics in Rheumatology ASIA 2009
Written by Ramon Miguel Molina   
Tuesday, 08 December 2009

Professor Sandra V. Navarra preparing her lecture on pain syndromes“A 69 year old female, known hypertensive was seen at the clinic for acute onset of eye and mouth dryness with a bilaterally enlarged parotid glands and edema. Initial diagnosis at that time was Sjogren’s syndrome with glomerulonephritis. Two months later, she returned with an enlarging mass on the right breast and modified mastectomy was performed with a diagnosis of Breast Lymphoma. After seven months, she experienced sudden monocular blindness of the Right eye and MRI of the orbits revealed swelling and enhancement of the intracanalicular and prechiasmatic segments of the right optic nerve.”

No. This is not an episode of House M.D. or something you normally read in Harrison’s Textbook of Internal Medicine. This is real life Medicine. And this is what Ten Topics in Rheumatology is all about.

Professor Graham Hughes delivering his opening message on Ten Topics in Rheumatology AsiaIt all started in 1985 at the Lupus Unit of St. Thomas’ Hospital in London UK, where the renowned rheumatologist, Professor Graham Hughes brilliantly organized an innovative 2-day postgraduate rheumatology course aimed to bring together the best minds in the field of Rheumatology to discuss advances in Lupus and connective tissue diseases as well as to present interesting updates and rare or “hot” topics encountered in the clinics. Originally limited to the United Kingdom, the symposium has immensely grown in popularity and has reached past its borders with the efforts of Professor Hughes’ Singaporean counterpart, Professor Feng Pao Hsii who pioneered and hosted the successful Ten Topics in Asia Conference last September 2008.

This year, equally renowned Filipino Rheumatologist and founding president of Rheumatology Educational Trust Foundation, and the current head of the Section of Rheumatology of the University of Santo Tomas Faculty of Medicine and Surgery, our very own Professor Sandra V. Navarra M.D. successfully organized the 2nd leg of the Ten Topics in Asia here in our very own campus last November 28 and 29, 2009.
Read more...
 
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